PurposesSince its creation the association has launched numerous projects in order to inform people about the first signs and symptoms of the disease and its serious consequences. It also develops a better knowledge of the disease for the persons who regularly take care of children in schools, day nurseries, leisure centers and even in places of health. The association mainly helps parents and families whose child, brother or sister is dead, whatever the reason, in order to in one hand humanise more the relationship with the Civil Service and in the other hand offer them a psychological and material help. Actions which still have to be led: informing more about the disease, leading a better prevention, dealing with handicap such as the issue of amputation as a priority and conceiving prosthesis for children. |